Chronic Illness Management Not Lazy!

Yep just because I am resting does not mean I am Lazy!

So many of you know that I had booked today with myself for a sofa day to charge up again after over doing it, which I mentioned in my last blog.

I am writing while on the sofa before I get any worse because I feel like this is so important to share as I feel it right now.

I am so fatigued, one of the hateful symptoms of my illness chronic fatigue syndrome (M.E.). The sheer level of fatigue I get is unbelievable. Like you definitely would not believe me unless you felt it yourself. This is why my community is so important to me because they get this fatigue too! Some have it with Fibromyalgia, or M.S or many other illnesses. It is the worst of fatigue I have ever felt. Think like having a need to scratch your head with your arm, but you are just too weak to lift your arm.

This is how much of a rollercoaster chronic illness can be. When I woke up this morning, I actually didn’t feel too bad. I then started listing in my head what I could do today, start printing out the next batch of orders, allocate their stock, melt some more meltys, work on new candles and much more.

But within 20 minutes my body and mind were screwed! So fatigued and my hips burning. I knew then I was not getting away with it today and it would be an inevitable resting day.

I do think resting should be done on a regular basis, whether you feel good or not. Think of it like a preventative measure. I have managed to do that before, rest while not too bad, and then I felt super charged the next day. The key in this is to still not over do it or you zap your own battery way too fast.

But today is a no choice day. I am on sofa and staying here all day no matter if this lifts or not because I know and have experienced bad crashes that last weeks. I know it is vital to sacrifice this day to prevent triggering my crash. I can usually read the signs that a crash is coming. Like my brainfog gets worse, my fatigue comes in waves daily worse than normal, plus pain flares. This is all day long and gets worse each day. This is me feeling it coming, knowing I have pushed my luck. I struggle to push through and that is when I know it is getting bad.

It is a horrible thing to feel, but resting can help reverse it. I have had to take 3 days in a row resting before because I had pushed too far. Some crashes have happened that I just couldn’t pull out of for weeks. I am lucky that over 10 years I have learned the signs and my limitations and what to do to help prevent it so I can try to live a normalish life. Now don’t get me wrong there are times I get bad and it literally just happens from nowhere. This is the lack of control we spoonies have to deal with and why making plans is so stressful to us.

What about you? Do you know your triggers and what do you do to prevent a crash as best you can?

DIET WEEK UPDATE

Yep I am still working on this diet thing. I in all honesty have been about 75% good. I do feel a difference which is cool, but this diet is a marathon not a sprint and I want it to be achievable and realistic as someone with chronic illness. I had a few days where there was not enough spoons to make healthy from scratch so I had to make choices. Grabbing toast with bananas and peanut butter helped. We did order Chinese however, I went for boiled rice with curry, a portion of chips so I could take just few and then I made some breaded chicken of my own for less calories!! I did eat some cake as we were over at mums for her birthday, oh and today I ate a white chocolate digestive biscuit because they are new and I was super curious. Turns out they are not that great!! But I needed to know.

This morning was toast and chicken sausages. what about you guys? How are you doing, those of you that are dieting with me? I am sure some are doing way better than me? I know some of you are working out too, go you!! So glad to be doing this together too. It is a great way to keep going as we are supporting each other!!

Ok my wee body is getting super fatigued now, so I need to go lie down properly, no working at all, even though this does not feel like work! I love it.

Oh and coming soon, I am going to start podcasting, but more like me blogging while talking into a microphone instead of typing? I will be doing that for my paid subscribers. Talking about reels stories and just journal chats. But I have to look into a good microphone first and how to do it! Oh and maybe getting some of you onto the podcast in the near future too? Just gotta figure out how to do it first.

I will also be giving a paid subscriber a £10 gift voucher for my website each month, so one of you will get an email soon. There is only a few of you so high chance of winning woop!

Love yas all

Bubba

Have an awesome Sunday and if you are about there is a small restock to keep us going until end of month tonite 8pm, including a brand new fragrance launching called Twisted Fae. She is stunning but a little bit cunning, push her and she will take it, but push too far and you will see her twisted side! Narcissists beware with the twisted fae inside us, when we unleash her, there is no turning back! xx